July 4, 2016

Dangit - Larry had another seizure today. I'm 90% sure it's because of them messing with his meds due to the shortage.
It seemed that he did better with the clonazepam than he is with the clobazam. I'm going to talk to his seizure doctor tomorrow and see what he thinks.

July 2, 2016

Well, Larry made it 6 weeks without a seizure.... until today.  I was out grocery shopping and he called me and let me know.

The good news is he managed to get the ativan out and take it properly, which stopped the seizure. This was a pretty significant one - his shoulder was starting in on the "fun"!  He's pretty sore and a bit upset. :(

I'm wondering if the med switch had anything to do with it - he is now back on the clobazam as of Thursday.  Hopefully there's no more shortages - he gets the fun of withdrawing from the new med, and restarting the old med.  yuk.

June 16, 2016

Great.  A clobazam shortage has caused Larry to get a different med - clonazepam.  *sigh*  it's for two weeks, and hopefully he'll be back on the right stuff then.

June 2, 2016

Larry saw Dr. Yankovski today - and the news is good, in a way.
The EEG had no recorded episodes of seizure activity.
when asked if the seizures could go away - we were told that at over 2 years, it's doubtful they will go away completely.  It's a balance between meds and side effects.  Given that Larry only has seizures about once a month or less - we left the med balance as it was.

Larry's a bit bummed out about the fact that no hand pulsing was recorded, but it only means that if it was seizure activity, it wasn't strong enough to record.

Looking on the bright side, if the pulsing is a seizure, it's self-limiting and that's good.